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A Pilot Study on the Willingness of Premarital Malays on Premarital Thalassaemia Screening

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cris.virtual.departmentUniversiti Sains Islam Malaysia
cris.virtual.departmentUniversiti Sains Islam Malaysia
cris.virtual.orcid0000-0001-6189-1351
cris.virtual.orcid0000-0002-6299-7796
cris.virtualsource.departmentf7177eb2-a803-4523-b621-a71da1f71615
cris.virtualsource.departmentce7f4f63-c874-4cb3-bc21-2bc916b40e4c
cris.virtualsource.orcidf7177eb2-a803-4523-b621-a71da1f71615
cris.virtualsource.orcidce7f4f63-c874-4cb3-bc21-2bc916b40e4c
dc.contributor.authorNor Ezzati Nor Albashrien_US
dc.contributor.authorNoor Fadzilah Zulkifli
dc.contributor.authorAsral Wirda Ahmad Asnawien_US
dc.contributor.authorZetty Nadia Mohd Zain
dc.contributor.authorRashidah Mohameden_US
dc.contributor.authorJameela Satharen_US
dc.contributor.authorAinoon Othmanen_US
dc.date.accessioned2024-05-27T14:37:09Z
dc.date.available2024-05-27T14:37:09Z
dc.date.issued2017
dc.descriptionVolume:2 Issue:2en_US
dc.description.abstractThalassaemia is one of the most common autosomal recessive blood disorders in the world and its carrier status is prevalent in nearly 15% of Malaysian population. The global and economic burden for lifelong care of those affected increases every year. Currently, there is no policy on thalassaemia-carrier screening for couples prior to marriage besides HIV/AIDS screening in Malaysia. Other countries such as Iran, Iraq, Turkey, Bahrain and Saudi Arabia have established a policy for thalassaemia prevention by conducting premarital thalassaemia screening. Zero thalassaemia cases in new-born child in Cyprus have proven that thalassaemia can be prevented. This study aimed to investigate the willingness of premarital Malays on premarital thalassaemia screening. A set of questionnaire was distributed to 57 persons at premarital course sites and wedding fairs and expositions held in Kuala Lumpur and Selangor. Components in the questionnaire included: 1) demographic 2) knowledge about thalassaemia, signs and screening method 3) attitudes towards thalassaemia premarital screening 4) practices of premarital thalassaemia screening. Analysis for the questionnaire was performed using IBM SPSS Statistics 23.0. A majority of the participants (75.44%) have never heard of thalassaemia as a medical condition. However, at least half of the participants (56.14%) agreed that premarital screening is needed to know their status of thalassaemia. In terms of facilities provided, widely covered campaigns about facilities of the screening test is also one of the factors that could encourage people to do premarital thalassaemia screening (35.09%). Even though premarital thalassaemia screening is not an obligation, 50.88% of participants agreed that it is important. The main reason people refused to do premarital thalassaemia screening was because they were afraid to know the test result and how it may affect their lives. Although preliminary, we have demonstrated that the level of knowledge concerning thalassemia among Malay Malaysians is still low. This may contribute to the low awareness about the effects of the disease and the importance of premarital thalassemia screening. However, most participants agreed that it is beneficial to perform the premarital thalassemia screening to identify individuals at risk of this disease. Nevertheless, many factors need to be taken into consideration if premarital thalassaemia screening is to be implemented in Malaysia as a national policy.en_US
dc.identifier.epage2
dc.identifier.issn2550-147X
dc.identifier.issue2
dc.identifier.spage1
dc.identifier.urihttp://apps.amdi.usm.my/journal/index.php/jbcs/article/view/135
dc.identifier.urihttps://oarep.usim.edu.my/handle/123456789/3452
dc.identifier.volume2
dc.language.isoen_USen_US
dc.publisherUniversiti Sains Malaysiaen_US
dc.relation.ispartofJournal of Biomedical and Clinical Sciencesen_US
dc.subjectknowledge, attitude, practice, premarital screening, thalassaemiaen_US
dc.titleA Pilot Study on the Willingness of Premarital Malays on Premarital Thalassaemia Screeningen_US
dc.typeArticleen_US
dspace.entity.typePublication
oairecerif.author.affiliation#PLACEHOLDER_PARENT_METADATA_VALUE#
oairecerif.author.affiliationUniversiti Sains Islam Malaysia
oairecerif.author.affiliation#PLACEHOLDER_PARENT_METADATA_VALUE#
oairecerif.author.affiliationUniversiti Sains Islam Malaysia
oairecerif.author.affiliation#PLACEHOLDER_PARENT_METADATA_VALUE#
oairecerif.author.affiliation#PLACEHOLDER_PARENT_METADATA_VALUE#
oairecerif.author.affiliation#PLACEHOLDER_PARENT_METADATA_VALUE#

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